Welcome to the Neuroblastoma Society Website
Neuroblastoma is a rare and aggressive childhood cancer.
About a hundred children in the UK are diagnosed each year.
The Society works exclusively for these children in raising funds for British research into the disease, and offering information and support for anyone affected by neuroblastoma.
On this website you can find:
- Information about neuroblastoma - see FAQ or download the Society's Booklet for Parents
- Details of our befriending arrangements - speak to a parent who has experience of the disease
- What the Neuroblastoma Society does in search of a cure - find out about current research
- How you can help us - organise a fund-raising activity or make a donation
- How you can join the Society
- A downloadable book suitable for pre-school children about being treated for cancer
Medical News and Announcements
NEUROBLASTOMA RESEARCH SYMPOSIUM – Future Treatments for High Risk Neuroblastoma
FRIDAY, 3rd DECEMBER 2010 at the Cancer Research UK Cambridge Research Institute, CAMBRIDGE
Clinicians, researchers and charity representatives are invited to attend.
Click here for further information.
Antibody Treatment (antiGD2) trial for high risk neuroblastoma patients
Children in the UK with high risk neuroblastoma are set to benefit from a new international clinical trial – funded by Cancer Research UK – which uses immunotherapy to help prevent the disease from coming back.
The phase III trial, which opened in the UK in December 2009, builds on early promising results from a US study, which found that treatment with immunotherapy – boosting the immune system to fight the disease – improved the chances of survival from the disease.
Download the Cancer Research UK press release here for further details.
New Staging System for Neuroblastoma
A new internationally agreed staging system, used in conjunction with a new risk classification system and based on analysis of clinical data from 8,800 children, is being introduced.
The expectation is that this will allow a more precise matching of the risk of therapy with the risk of disease.
The adoption of these definitions worldwide will allow more accurate comparison of treatment strategies.
Download details here.
General News and Announcements
Society Newsletters
Keep up to date about recent developments in treatment as well as general information about the Society’s activities by downloading our regular newsletters here.
Spring Conference and AGM 2010
Download a summary of the Conference here.
Popular Running Events
The Society has managed to secure guaranteed places in a limited number of running events during 2010 and 2011, and is now on the lookout for volunteers to participate and raise sponsorship money.
Runners are asked to pledge to raise a minimum amount of sponsorship for the Society and in return will be sent a fundraising pack which includes Gift Aid approved sponsor forms, posters,
information on setting up a Just Giving page together with a society T shirt or running vest. Details of the events appear on the Fund-raising page.
The Adventures of Parker the Parrot Book - A new children’s reading book has been written by Jenny Homfray in memory of her grandson Felix Mason and she will generously donate half her royalties to the Society.
See further details and an application form on the News page.
