Welcome to the Neuroblastoma Society Website
Neuroblastoma is a rare and aggressive childhood cancer.
About a hundred children in the UK are diagnosed each year.
The Society works exclusively for these children in raising funds for British research into the disease, and offering information and support for anyone affected by neuroblastoma.
On this website you can find:
- Information about neuroblastoma - see FAQ or download the Society's Booklet for Parents
- Details of our befriending arrangements - speak to a parent who has experience of the disease
- What the Neuroblastoma Society does in search of a cure - find out about current research
- How you can help us - organise a fund-raising activity or make a donation
- How you can join the Society
Medical News and Announcements
Antibody Treatment (antiGD2) trial for high risk neuroblastoma patients
Children in the UK with high risk neuroblastoma are set to benefit from a new international clinical trial – funded by Cancer Research UK – which uses immunotherapy to help prevent the disease from coming back.
The phase III trial, which opened in the UK in December 2009, builds on early promising results from a US study, which found that treatment with immunotherapy – boosting the immune system to fight the disease – improved the chances of survival from the disease.
Download the Cancer Research UK press release here for further details.
New Applications for Grant Now Invited
Trustees now invite applications for new neuroblastoma research studies.
For further information download grant guidance notes and timetable and an application form.
The deadline for submission of applications is 12 noon on Friday 8th January 2010.
New Staging System for Neuroblastoma
A new internationally agreed staging system, used in conjunction with a new risk classification system and based on analysis of clinical data from 8,800 children, is being introduced.
The expectation is that this will allow a more precise matching of the risk of therapy with the risk of disease.
The adoption of these definitions worldwide will allow more accurate comparison of treatment strategies.
Download details here.
General News and Announcements
Spring Conference and AGM 2010 – Advance Notice
The Society's Spring Conference and AGM will be held on Saturday 24th April 2010 in Our Lady of Loreto & St. Winefride's Roman Catholic Church Hall, 1 Leyborne Park, Kew Gardens, Richmond, Surrey, TW9 3HB.
Membership Renewal 2010
It is subscription renewal time and those members who pay annually by cheque can download the renewal form here.
to complete and return along with a cheque (payable to The Neuroblastoma Society) to cover their subscription for 2010.
The cost of membership is £10 per person per annum or £17 per couple (two adults aged 18 or over living at the same address).
If you would like to pay by Standing Order, then please complete a Mandate which can be downloaded here.
Please remember to keep the Society informed of any change of address and contact details – you can e-mail membership@neuroblastoma.org.uk or write to The Membership Secretary, The Neuroblastoma Society, 54 Forest Road, Richmond, Surrey, TW9 3BZ, with your new details.
The Adventures of Parker the Parrot Book - A new children’s reading book has been written by Jenny Homfray in memory of her grandson Felix Mason and she will generously donate half her royalties to the Society.
See further details and an application form on the News page.
18 April 2009 Society Spring Conference and AGM in St. George’s Church, Bloomsbury, London.
A report appears on the News page.
